marytt@sbcglobal.net
My husband (47) has AMN with brain involvement. His behavior has changed drastically in the last 5 or so years. He is completely irrational. You can not reason with him and he has become rude, agressive and just down right mean. He screams at me in front of our 4 children all the time (ages 17, 15, 14 & 12). No one knows what to do and I'm at the end of my rope. I have stood by him since he was diagnosed 16 years ago, but he says I do nothing to help him and I don't sympathize with him. It is hard to muster sympathy when he barks orders at me non-stop and calls me a "miserable bitch." I feel like I'm putting my children in a horrible situation and they are completely against their father. I have explained to them that his brain is not working right, but that is little comfort. He gets on these tangents and a few days ago accused me of trying to kill him. He is also convinced that I have turned our 12-year-old son into a "fag." That is completely in his mind and I'm scared to death that he will say something to our son, which would be devasting to him. He has already told this to our 3 older girls. Has anyone encountered these kinds of problems? He acts somewhat "normal" around others, but acts like a phycho with his family. His parents see how he is, but say they don't know what to do. HELP! He's seen psychiatrists, counselors and other doctors, but he is convinced that there is nothing anyone can do for him unless they can cure his disease. He is not open to help.
Posted By: marytt
Posted On: May 9, 2008 11:13 pm
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Re: marytt@sbcglobal.net
My son is 17 years out from transplant and struggled with irrational thoughts and anger until he was put on celexa. It almost sounds like he is suffering from depression and severe anxiety.
Posted By: Cynthia
Posted On: Oct 28, 2008 8:32 pm
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Re: marytt@sbcglobal.net
Wow - I am struggling with reading your post as that is what i had dealt with with my now ex-husband. The behavior you described above was exactly what i dealt with, however we had no idea that he had ALD. It was not until after the divorce that he was diagnosed. so sadly we did not make it, and i had to think of our 2 1/2 year old little girl who was becoming afraid of her father. At the end i was in fear of our safety, not knowing if he would become physically violent with us. He at times would hit walls or objects, which frightedned me to no end. He now lives many thousands of miles away and we talk to him over the phone approx. 3 times per week, and our little girl now remembers her daddy in a positive light from the phone conversations. I believe he is on some type of anti depressant which appears to be helping his rage. I admire how long you have stood by his side as i know how frustrating it can be when they are in a rage doing and saying the most horrible things anyone can imagine. All i can say is to remember that it is not your fault, and you have to also think about your children and how this is impacting them.
On another note - Based on what i have read, men with AMN don't live as long as your husband. Is he undergoing any type of treatment? Medication? I have been told that my ex is too far along for anytype of treatment. Would love to hear what you are doing or know. Thank you!
Posted By: BB
Posted On: Feb 4, 2009 11:53 pm
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