|
Dear Friends,
2007 was an outstanding year for the foundation. We were able to provide information and assistance to more families than ever before. Although for some that meant enduring tragic loss, we continue to strive towards making education an important part of what we do.
This year's fund raising activities were more successful than ever before. Due in Large part to the relationship we forged with members of Team AJ, a courageous group at Harvard University, our funding is at an all time high. This affiliation is certain to grow stronger, and I am sure that we will endeavor to aim higher and further in our collective efforts to find solutions.
Towards the end of 2007, Dr. Patrick Aubourg of Paris reported that his gene therapy trial, aimed at stopping the progress of ALD, was a success. Dr. Aubourg was able to apply this therapy to two boys from Spain who were already ALD affected. Our understanding is that his efforts have produced fruit, and that the disease is no more in the case of these two young men. The foundation is encouraged by this and is aiming towards 2008 being the year when Dr. Aubourg's therapy takes hold globally and provides a meanigful option for families affected by ALD.
I am also encouraged to reprt that foundation Medical Advisory Board Member, Dr. Edwin Horwitz from The Children's Hospital of Philadelphia is well on his way to commencing his own cell therapy trial to the benefit of ALD. As more information becomes available, I will be sure to keep you all well informed.
Thank to each of you for making 2007 a success. I look forward to working with each of you in the new year to the benefit of everyone who has gone through ALD.
Sincerely,
David A. Cry
Chief Executive Officer
The Adrenoleukodystrophy Foundation
Comments(0)
Email to Friend
|
